We have been very busy lately and the children have been sick. Baby Jordon is very sick now. We almost had to take him to the hospitol today. I am praying he gets better very soon. He has been back on his breathing treatments again and on a prescription. But now he is running a temp. He has this sad poor cry. I cry right with him. We love this little guy so much and feel very blessed to be his forever family.
Our older daughter Amber had surgery on Tuesday. She had her eleventh yes 11th surgery. She has Laryngeal Papillomas on her vocal cords. This is very dangerous, they can block her air way or go down into her lungs. Amber is stating to feel a little better, but it is taking a few days this time. She will need to have surgery in 3 months again to get more of this off of her vocal cords. Amber has had to deal with this for a number of years. It makes her voice difficult for me to hear her, and many people cannot hear what she is saying.
Amber we love you very much and are very thankful you have a wonderful husband to help take care of you and your sick children. Yes, they have two sick children, Camren and Aubrey.The both have this bad cold , maybe RSV.They both have breathing treatments now also. So on Tuesday we had three little ones that needed breathing treatments and meds through out the day. That was while David took Amber to have surgery at a hospitol 2 hours away. Her Doctor is awesome so they have to travel to him. But we are very thank for this doctor . He has done 9~ nine of Amber's surgeries so far. We sure hope and pray they can find a cure for this.
Bella is doing wonderful!! Dad and the children have thaught Bella to climb the stairs.. Thye all think it is great.. Not mom, i am so worried she will come bouncing back down and get hurt. I think there is like 15 stairs. So it is pretty high up for our little Bella. Bella went to the foot doctor and got little wedges in her shoes. We are hoping they help her build some muscles and she will walk all by herself. We will see in a few weeks. Bella also went to the eye doctor and she got a new prescription for stronger lenses. Plus she has a lazy eye. So we have to put drops in her good eye, so she has to use her lazy eye.So we will have this rechecked in March.
Deztany has been Dez. She can say the funnest things, but she really believes what she thinks. She is only 9~ nine years old. She was riding with grandma in a car, and asked granma if she was tired. Grandma said why Dez, Dez told grandma if she was tired Dez would drive for her. Grandma asked if Dez had a drivers lisence. Dez told grandma she would just use grandma;s lisence. Sad thing is Dez really thinks this is possible..That is that great FAS/FAE that really helps her to figure out things.. Here is another story about Dez. We went to cosco to go shopping and it is an hour away. So we have to drive on the highway for an hour to get home. Dad was driviny the suburban the whole time mind you. When w egot home Dez went up to dad and asked dad if he slept on the way home. She was very serious.She thought because she got to take a snooze that dad did also. But she doesn't get it. Well that is part of a day in the life of Dez. We love you Dez!!!
All the other children are doing great so far. I am hoping they all don't end up very sick. We will post more later. It is late and i could use a few hours of sleep. Yes , poor baby Jordon will be up a few times during the night. He will need his breathing treatments and a bottle..Good night